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spinal muscular atrophy

A family that raised $2 million for their baby’s life-saving medical treatment has received it for free

by FarahR

When Lucy Van Doormaal was born on April 1, 2020, at a Vancouver hospital, she appeared to be a perfectly healthy baby. She weighed 7 pounds and 13 ounces, and she had the most beautiful bright blue eyes. Her parents, Scott and Laura, were absolutely in love with her, saying that she was a “great … Read more

8-year-old with muscular dystrophy surprised with Halloween costume to fit his wheelchair

by FarahR

Aside from all the candy, what makes Halloween exciting is getting the chance to dress up however we like. And although we can’t celebrate the holiday like we used to, that doesn’t mean we can’t have fun with our costumes, too. This 8-year-old boy from Rhode Island had a simple request for Halloween this year: … Read more

Traveler is using his blog to inspire other wheelchair users to explore the world

by FarahR

Not many people can say that they’ve visited all seven continents, but one of the lucky few who can is this wheelchair-user named Cory Lee. Cory, 30, was diagnosed with spinal muscular atrophy at a very young age. Because of his condition, he began using a wheelchair at the age of 4. His mother, Sandy … Read more

Doctors said he wouldn’t live past two years old, but brave boy continues to defy the odds

by FarahR

Brittany Stineman was told that her son, Nash, wouldn’t live past his second birthday because he had spinal muscular atrophy with respiratory distress – a rare neuromuscular disease. But Nash has been defying the odds ever since his diagnosis and  recently, he celebrated his third birthday! Birthday parties typically look the same for most children. … Read more

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