rare genetic condition Archives

Single dad receives kidney donation from total stranger who replied on social media

by FarahR

Thanks to a life-saving act of kindness through organ transplant, two dads who were once strangers are now great friends. Chris Perez, 40, and Steve Sanders, 46, have developed an unbreakable bond after the former donated his kidney to Steve, who has a rare genetic condition known as uromodulin kidney disease (UKD). Steve learned his … Read more

After getting their son’s rare diagnosis, his parents are proud — of him and his unique locks

by FarahR

There are only 100 confirmed cases of uncombable hair syndrome globally, and an adorable toddler named Locklan Samples is one of them. The one-year-old’s mother, Katelyn Samples, from Atlanta, Georgia, has been raising awareness of the rare genetic condition by sharing photos of her son on Instagram. Samples, 33, first heard about uncombable hair syndrome … Read more